Parenting Stress And Coping Strategies For The Parent Of Children With Cystic Fibrosis

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Basil Amarneh, MPH, PMH-CNS, PhD , Ansam Abu AL Hassan, RN, MSN


Background: Cystic fibrosis (CF) is an inherited autosomal recessive chronic disease affecting the body's mucus glands. Also, it mainly affects the respiratory and digestive systems and reproductive systems. Having a child with Cystic fibrosis (CF) is stressful for parents, as it requires the family to change their life to adopt an alternative lifestyle For their Child. To overcome the cons of Cystic fibrosis (CF) effectively, parents must have accurate and adequate information about the disease, treatment, and appropriate management.

Purposes: the study aims at exploring parenting stress and coping for the parents of Cystic fibrosis


Material and methodology: the cross-sectional design was used between January and July 2019; a sample included 200 parents (106 mothers and 94 fathers aged 19 years or older) who have Cystic fibrosis (CF) Child and met the requirements of the inclusion criteria and agreed to take part, who attend health facilities. The following measures used were:  the parenting stress index short form (PSI), the child coping health inventory for parents (CHIP), and the cystic fibrosis questionnaire-revised (CFQ-R).

Results: there is a significant association between parenting stress, coping strategies

(especially coping pattern II), and health-related quality of life for children with Cystic fibrosis (CF).

Recommendations: Further research is needed regarding parenting stress and coping

strategies for parents of children with Cystic fibrosis and improving the quality of life for cystic fibrosis patients to provide more evidence-based findings.

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