Effect of the Family-Centered Nursing-Based Palliative Nursing Model on Family Independence Caring for Chronic Kidney Disease Patients with Hemodialysis

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Virgianti Nur Faridah, Nursalam Nursalam, Ninuk Dian Kurniawati, Arifal Aris

Abstract

Hemodialysis is a complex and long-term therapy that requires support from the family in the form of physical, psychological, and socio-spiritual. The majority of families experience a lack of independence in caring for hemodialysis patients due to a lack of knowledge and skills. This requires a family-centered nursing-based palliative care model that can increase family independence in caring for patients with chronic kidney disease. This study used a quasi-experimental design with a pre-post-test control group design. The population in this study were patients and their families with chronic kidney disease undergoing hemodialysis at Muhammadiyah Lamongan Hospital. The samples were taken by purposive sampling as many as 24 patients and caregivers in the intervention group and 24 patients and caregivers in the control group. The independent variable in this study is a palliative nursing model based on family-centered nursing with an instrument in the form of a training module, while the dependent variable is the independence of family caring as measured by a seven-aspect questionnaire. The analysis uses Friedman's nonparametric. The results of the study shows that in the intervention group, all indicators increased in the good category and decreased in the poor category from pretest to posttest 2. This did not occur in the control group. The results of the Friedman statistical test analysis in the intervention and control groups on the seven indicators were equally significant. However, the effectiveness of giving palliative nursing models based on family-centered nursing is higher than family education. This is evidenced by the statistical value and the average post in the intervention group was higher than in the control group. The palliative nursing model intervention based on family-centered nursing is able to increase the independence of the family in caring for chronic kidney disease patients with hemodialysis.

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