Experiences of Family members of people with Parkinson’s Disease

Abstract

Background: The people who are close to someone who has Parkinson's disease play a vital role in their everyday lives. It is crucial to support the patient's family members in providing care, adjust to their situation, and make psychosocial adjustments.

Objective: This study aimed to find and then compile family carers' accounts of caring for Parkinson's disease (PD) patients.

Aim: The purpose of this study is to describe the role that family members play in providing daily care for a family member who has Parkinson's disease and to investigate how family members perceive this role.

Conclusion: The themes represented many facets of the lives of family carers impacted by providing care for a member with Parkinson's disease (PD), and these pose questions for oversimplified notions of family caregiving and suitable support networks. The results also point to a number of suggestions for clinical practice.